| At Twenty-Four
years old Shelsi Stolworthy couldn’t seem to shake
a cough that had plagued her since October 2006. Along
with the cough was the occasional fever and drenching
night sweats. However, it didn’t seem serious
enough to send her for x-rays. Eventually she did visit
a doctor who prescribed antibiotics for what was believed
to be bronchitis, but still her cough persisted. What
frustrated her most about this was not being able to
sing. This was also a problem for those of us who have
heard her angelic voice.
On January 25, 2007, after deciding
she couldn’t take being sick another day, in Shelsi’s
own words, this is what happened next:
"Today is the 25th of
January (2008). January 25th, 2007 is when I was diagnosed
with Cancer. I remember everything seemed to happen
so quickly that day. I went in for a chest x-ray. As
soon as the doctor read it he told me to go to Urgent
Care for another Doctor's opinion. I was shocked to
hear him tell me that I needed to go to the ER at Ventura
County Medical Center. I made some phone calls, packed
a bag, and Eric and I headed off to the ER. The place
looked really packed and we thought we'd be waiting
all night. To our surprise, we were called up and I
was stuck with my first IV in my hand. I had to look
away. It wasn't too painful, though. Just uncomfortable.
Then I went back to the waiting area and only had to
wait a short while till I was called back to a little
area with a bed and curtains. Sometime in the mix of
things I was taken to get a CT scan. Then one doctor
after another came to talk to me. I remember one doctor
telling me how incredibly serious this was. No one knew
exactly what was going on in me, but they knew it wasn't
good. It kind of felt like a dream to me. The doctors
were very nice and sincerely concerned. We were up all
night until we got transferred to a room. The first
big procedure that was done was a bone marrow biopsy.
Although they shot me with some medicine to numb me,
I could still feel pain as they ground their tools into
my lower back bone to get enough bone marrow. Actually,
I think that was the second big procedure. The first
was to biopsy the mass in my chest to see whether or
not it was cancerous. That was a breeze because I was
given morphine and numbed up so much that I couldn't
feel a thing. I just remember this skinny tube thing
sticking out of my chest. Later, I was getting a EKG
done when my doctor walked in. He told me that the biopsy
results showed that it was cancer. He had tears in his
eyes. I didn't cry. I just remember nodding and saying
"uh huh, okay, alright, uh huh...etc." as
he told me. When I came back to my room, everyone was
in there, crying and teary-eyed. This all may sound
depressing but it really isn't when you think about
all the healing and miracles that have taken place.
Well, I'm still waiting to hear from the hospital so
I'm guessing the MRI isn't going to get done until next
week, which might be for the best. I will update again
soon! Bye for now!"
The
official diagnosis is primary mediastinal diffuse large
B-cell non-Hodgkin’s Lymphoma. Believe it
or not that’s the good news. Out of all the cancers
she could have, that’s one of the most treatable.
The not so good news was the lack of protocol for treating
someone whose Lymphoma had infiltrated the heart. They
were concerned that as the chemotherapy drugs attacked
the cancer cells within the heart wall it might leave
behind holes – which for obvious reason would
not be a good thing.
The heart involvement also made it
more difficult to find a suitable Tertiary Facility
-- one that could provide a Cardiothoracic Surgeon as
well as an Oncologist. That's why it took until February
1 (a total of 5 days) for her to finally be transported,
by ambulance, from Ventura County Medical Center, to
Cedars Sinai Medical Center in Los Angeles where a Cardiothoracic
Surgeon had agreed to take her case along with Dr. Lill,
head of the out-patient Cancer Center and Medical Director
of the Blood and Marrow Transplant Program at Cedars
Sinai.
She spent most of February in the
Saperstein Critical Care unit at Cedars, but was moved
to the oncology floor between rounds one and two of
chemo because she had done so well with round one. However,
the night when she got her second infusion, her heart
began to have serious issues, racing over 150 BPM and
then dropping where there was a pause of almost 5 seconds
between beats. They quickly moved her back to Saperstein
Critical Care. Thankfully, within a couple of days,
her heart stabilized. During this tense period of her
treatment, the shadow of open heart surgery loomed in
everyone's mind.
On March 2, after 34 days of hospitalization,
and two rounds of chemotherapy with the cardiac and
oncology teams close at hand, she was finally released
to go home with a heart monitor which was designed to
send a signal directly to a physician if her heart misbehaved.
She completed the remaining 6 rounds of chemo as an
out-patient, and then went on to get 17 days of radiation
to her chest.
A few weeks later, in a follow up
appointment with Dr. Lill, he told her to try and get
back to her normal life and forget about all this cancer
stuff. She had already enrolled in the fall semester
at school and had been to her first week of classes.
However, strange headaches that started in her neck
and ran up the back of her head, began to frequent her
days. Over time they got worse, and were joined by vomiting.
After a brain scan on August 28, a 5-6 cm mass was discovered
in the left frontal lobe of her head. She was admitted
back to Cedars on August 29, and on the 30th she underwent
brain surgery to remove the mass. Dr. Ray Chu was her
Neurosurgeon, who we found out was a personal friend
of Mike Seay, another friend of Shelsi and Eric. Small
world huh?
Although
they initially got the entire mass, microscopic cells
are always left behind. So even though she received
6 out of 8 rounds of high dose Methotrexate, a Chemotherapy
drug which is known for its ability to cross the blood
brain barrier that many chemotherapy drugs cannot, around
the end of November an MRI revealed the tumor had started
to grow again.
Her chemotherapy was discontinued
and a month of whole brain radiation began - but not
before a team of top doctors from Cedars Sinai was brought
together to work on her case. They have spent countless
hours coming up with the best course of treatment for
her. Amidst the frustration of once again losing her
hair and having her perfect oval face swell up again
due to the steroids, she has, in her usual Shelsi style,
continued gracing us with her amazing faith, attitude
and beautiful smile.
Today, January 28, 2008 she was readmitted
to Cedars to get an MRI and full body scan to see if
the radiation did its thing to blast away that nasty
tumor in her brain, preparing her for a stem cell transplant
which will give her a new cancer free immune system.
Enjoy this website, created for her
by Steve Lawson in the beginning of this journey, to
help connect her friends and family worldwide. Updates
are posted usually about once a week - or as news warrants.
From the beginning emails that were sent out about Shelsi’s
condition, to the most recent events, it tells the story
of this journey, Shel’s brave and amazing attitude,
her humor at losing her hair and her compassion for
those of us who love her. It also demonstrates the miracles
that have transpired through modern medicine, wonderful
caring doctors & staff, but most of all amazing
faith, prayers and love from all over the globe.
|